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Meredith Banasiak's avatar

Surrendering agency in healthcare is something I struggle with too! The distraction versus engagement culture dominates in healthcare - and healthcare design. It's even worse when the healthcare provider perception of the patient is that the patient is not capable of engaging - as in the case of pediatric patients, patients with cognitive decline, or developmental disabilities. Patient engagement however is recognized as a basic human right by WHO, IoM, and UN. I channeled the frustrations I experienced going through healthcare experiences with my young son into this paper, https://journals.uc.edu/index.php/cye/article/view/8356/6809

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